Perseverance Rewarded

Lately my blog has been about my son, Lewis, and for good reason, too!  You see, he’s the embodiment of the quote:  “May you live in interesting times!”

The complete quote is actually:  “May you live in interesting times and come to the attention of important people.”

Lewis has certainly managed to live in interesting times between the Autism and the Myasthenia Gravis, and he has certainly come to the attention of many people, all of whom are important by virtue of being here on this earth with Lewis.  

He’s a regular contributor to Irked Magazine and an ambassador to the world for children with Autism and Myasthenia Gravis.  He takes time to explain what it’s like to have Autism or Myasthenia Gravis to those who take the time to ask.  He does his best to put others at ease with his disabilities so they don’t feel uncomfortable and awkward around him and, later, around others like him.  And there have been a lot of newspaper articles written about Lewis over the years!

Now some claim that the saying is a curse that really means the wish is for your life to be turned upside down by the events surrounding it.   Without a doubt, the past 15 months have seen Lewis’ life turned upside down by the events that surround it as has my life.  But neither he nor I look at this as a curse.

This is a blessing in many respects because the past 15 months have brought out the best in those we know and those we do not know, those in our real life community and those in our online communities.  How bringing out the best in people can be misperceived as a curse is anyone’s guess.  Lewis and I choose to see this as anything but a curse.

Yes life is difficult for Lewis because of Myasthenia Gravis and because of Autism and because of anaphylactic level allergies and because of the other 6 co-morbid disorders with which he’s been diagnosed.  Yes life is challenging for me because I am the mother of a child with so many disabilities.

But I am also the mother of a child with many disabilities who is absolutely amazing and a blessing all in itself. 

This past Monday, Lewis graduated from Grade 8 … a mere 12 days after undergoing a thymectomy which is major surgery.  He set a goal for himself to be well enough to attend his graduation ceremony and, with the help of a wheelchair, he did just that!

His reward for “living in interesting times” was that he came  “to the attention of important people” — his classmates.  When he was awarded his Grade 8 diploma, he was also awarded the Medal  of Perseverance.   As if that was not amazing enough all on its own, what happened next was both amazing and humbling.

His entire class, without prompting from any adults, stood on their feet and gave him a long and loud standing ovation.  The adults followed suit.

So if the curse is to live in interesting times, then the blessing is that in doing so, many are touched in positive ways specifically because of those interesting times.

For those who would like to see photos of Lewis receiving the award as well as close up shots of the medal, click HERE.  You don’t need to be a member of Facebook to view these photographs but if you are a member, we invite you to join Lewis’ group, The Lewis Schofield Update and Support Group.

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2 Responses to “Perseverance Rewarded”

  1. Myasthenia-Gravis » Myasthenia Gravis Information Page: National Institute of Neurological ... Says:

    […] Perseverance Rewarded « Elyse BruceHe’s a regular contributor to Irked Magazine and an ambassador to the world for children with Autism and Myasthenia Gravis. He takes time to explain what it’s like to have Autism or Myasthenia Gravis to those who take the time to ask. … […]

  2. Myasthenia-Gravis » Perseverance Rewarded « Elyse Bruce Says:

    […] Perseverance Rewarded « Elyse BruceHe’s a regular contributor to Irked Magazine and an ambassador to the world for children with Autism and Myasthenia Gravis. He takes time to explain what it’s like to have Autism or Myasthenia Gravis to those who take the time to ask. … […]


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